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Down syndrome: still a social stigma.
Renu Jain1, David C Thomasma, Rasa Ragas
1Department of Pediatrics, Loyola University Medical Center, Maywood, IL 60153, USA.
American Journal of Perinatology
|April 9, 2002
Summary
Down Syndrome (DS) affects infants and is linked to maternal age. Despite medical advances, societal acceptance remains a challenge, necessitating interventions to improve attitudes towards DS children.
Area of Science:
- Genetics and Developmental Pediatrics
- Medical Ethics and Social Science
Background:
- Down Syndrome (DS) is a frequent chromosomal abnormality, with incidence rising with maternal age over 35.
- Significant advancements in medical and surgical care for DS infants have occurred over the past 30 years.
- Despite resource allocation for DS infant development, societal and parental acceptance remains suboptimal.
Observation:
- The perception of limited acceptance for DS infants persists, posing ethical dilemmas from prenatal diagnosis to early childhood.
- Ethical challenges arise in managing DS cases, particularly concerning parental and societal acceptance.
- Case examples highlight the ongoing struggle for social integration of children with Down Syndrome.
Findings:
- Health professionals must actively promote public acceptance of Down Syndrome.
- Encouraging social and community involvement for children with DS is crucial.
- Initiatives like a birth ritual are proposed to foster acceptance within families and communities.
Implications:
- Improving public attitudes towards Down Syndrome is essential for the well-being of affected children.
- Enhanced social integration can positively impact the development and quality of life for individuals with DS.
- Proactive engagement by healthcare professionals and organizations can drive greater societal acceptance and support for Down Syndrome.