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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Care of patients nearing death: another view
1Johns Hopkins Bayview Medical Center, 5505 Hopkins Bayview Circle, Baltimore, MD 21224, USA. tfinuc@jhmi.edu
Abstract:
A person with an advanced, progressive, ultimately fatal illness faces multifaceted suffering. It is difficult to be sick. Uncontrollable deterioration of one's body can be horrible. Many people detest seeking help from others, yet nearly all want companionship in the face of death. The choice is hard, between certain death, even if it is promised to be comfortable and dignified, and hope, even if it is a burdensome treatment that offers small chance of limited benefit. Dying patients are often expected to make such painful choices. Perhaps what is most painful is to be dying. A person whose near future necessarily contains all this will often need a trusted, unhurried companion, acting with gentle advocacy and humility. This paper offers perspective and suggestions to such companions/advocates.
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