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Disclosure after a sibling's death from AIDS.

Linda A Robinson¹

¹University of San Diego, San Diego, California, USA..

Family & Community Health

|April 23, 2002

Summary

Bereaved siblings vary in how they disclose their brother's or sister's death from acquired immunodeficiency syndrome (AIDS). Stigma influences decisions about sharing information after the death of a sibling from AIDS.

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Area of Science:

Social Sciences
Psychology
Public Health

Background:

The death of a sibling from acquired immunodeficiency syndrome (AIDS) can be a significant bereavement experience.
Societal stigma surrounding AIDS may influence how bereaved individuals disclose the cause of death.

Purpose of the Study:

To describe the patterns of disclosure used by adults whose sibling died from AIDS.
To identify the factors influencing these disclosure patterns.

Main Methods:

A descriptive study design was employed.
A cross-sectional sample of 87 adults who experienced a sibling's death from AIDS was recruited.
Sibling responses were audiotaped and subjected to content analysis.

Main Results:

Six distinct categories of disclosure emerged: Purposeful, "If Asked I Tell," Selective, Protective, Restricted, and Avoidant.
These categories varied based on the method of disclosure, the goal of the method, and beliefs about public disclosure.
Disclosure patterns were found to be variable among bereaved siblings.

Conclusions:

Bereaved siblings exhibit diverse strategies when disclosing the cause of their sibling's death.
The presence of stigma associated with AIDS necessitates careful consideration of disclosure methods by bereaved siblings.

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