Search research articles

ABOUT JoVE

Overview Leadership Blog JoVE Help Center

AUTHORS

Publishing Process Editorial Board Scope & Policies Peer Review FAQ Submit

LIBRARIANS

Testimonials Subscriptions Access Resources Library Advisory Board FAQ

RESEARCH

JoVE Journal Methods Collections JoVE Encyclopedia of Experiments Archive

EDUCATION

JoVE Core JoVE Business JoVE Science Education JoVE Lab Manual Faculty Resource Center Faculty Site

Terms & Conditions of Use

Search research articles

Related Experiment Videos

Coping with Prader-Willi syndrome.

Dena L Goldberg¹, Christy L Garrett, Cynthia Van Riper

¹Department of Family and Consumer Sciences, College of Agriculture, University of Wyoming, Laramie 82071-2354, USA.

Journal of the American Dietetic Association

|May 3, 2002

Summary

This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by

Same author

Applying the recommended indicators for the diagnosis of preterm and neonatal malnutrition: Answers to frequently asked questions.

Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition·2021

Same author

Authors' Response.

Journal of the Academy of Nutrition and Dietetics·2018

Same author

Identifying Malnutrition in Preterm and Neonatal Populations: Recommended Indicators.

Journal of the Academy of Nutrition and Dietetics·2018

Same author

Parent-implemented behavioral skills training of social skills.

Journal of applied behavior analysis·2017

Same author

The Munroe-Meyer Approach: Continuous Integration of Didactic Instruction, Research, and Clinical Practice.

The Behavior analyst·2016

Same author

A Methodological Discussion of Caffeine Research and Animal Avoidance Behavior.

Journal of caffeine research·2015

Same journal

How can I help my client who is experiencing a weight-loss plateau?

Journal of the American Dietetic Association·2011

Same journal

Nutrition professionals are obligated to follow ethical guidelines when conducting industry-funded research.

Journal of the American Dietetic Association·2011

Same journal

Accuracy of quick and easy undernutrition screening tools--Short Nutritional Assessment Questionnaire, Malnutrition Universal Screening Tool, and modified Malnutrition Universal Screening Tool--in patients undergoing cardiac surgery.

Journal of the American Dietetic Association·2011

Same journal

Health behaviors and weight status of childhood cancer survivors and their parents: similarities and opportunities for joint interventions.

Journal of the American Dietetic Association·2011

Same journal

Sensory evaluation ratings and moisture contents show that soy is acceptable as a partial replacement for all-purpose wheat flour in peanut butter graham crackers.

Journal of the American Dietetic Association·2011

Same journal

How much of racial/ethnic disparities in dietary intakes, exercise, and weight status can be explained by nutrition- and health-related psychosocial factors and socioeconomic status among US adults?

Journal of the American Dietetic Association·2011

See all related articles

Parents of children with Prader-Willi syndrome (PWS) face challenges with weight management and feeding behaviors. This study explored family-implemented dietary strategies and their effectiveness, highlighting the need for tailored approaches.

Area of Science:

Pediatric Endocrinology
Behavioral Science
Nutritional Science

Background:

Weight and behavior control are significant challenges for parents managing Prader-Willi syndrome (PWS).
Limited research exists on the practical implementation and effectiveness of dietary restrictions for PWS.
Understanding family coping mechanisms is crucial for supporting children with PWS.

Purpose of the Study:

To identify weight management advice given to families of children with PWS.
To explore nutrition concerns and coping strategies employed by these families.
To evaluate the effectiveness of implemented coping strategies for feeding and behavior issues.

Main Methods:

A two-step survey methodology was utilized.
Survey 1 identified parental coping strategies for PWS feeding issues.

Related Experiment Videos

Survey 2 assessed the frequency, effectiveness, and reasons for ineffectiveness of these strategies in a large cohort.

Main Results:

General weight management and dietary advice was provided to families.
Coping with food-related behaviors presented the primary difficulties.
Coping strategies varied significantly between families, with no single approach being universally effective.

Conclusions:

Families require tailored strategies to manage feeding behaviors in children with PWS.
There is a strong desire among families to share experiences and seek specific guidance.
Behavior management techniques, including incentives and modified approaches, show promise.