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Related Experiment Videos

Long-term dialysis survivors: a transformational experience.

Roberta Braun Curtin1, Donna Mapes, Marty Petillo

  • 1Medical Education Institute, Inc, Madison, WI, USA.

Qualitative Health Research
|May 8, 2002
PubMed
Summary

Kidney patients on dialysis can become active self-managers of their health. This study identified key affirmations and adaptations that help dialysis survivors transform their approach to disease management.

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Area of Science:

  • Nephrology
  • Psychology
  • Sociology

Background:

  • Kidney failure necessitates long-term dialysis treatment.
  • Patients face significant challenges in managing chronic illness and treatment.

Purpose of the Study:

  • To explore the processes by which kidney patients survive on dialysis.
  • To identify patient self-affirmations and illness experiences that facilitate adaptation.
  • To understand the transformation into active self-managers of kidney disease.

Main Methods:

  • Exploratory/descriptive study design.
  • In-depth, semistructured interviews with 18 dialysis survivors.
  • Qualitative analysis of self-affirmations and illness experiences.

Main Results:

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  • Identified four key self-affirmations enabling self-restructuring.
  • Identified four sets of illness experiences requiring adaptation.
  • Observed a transformation into comprehensive, active self-managers of disease and treatment.

Conclusions:

  • Patient transformation involves specific affirmations and adaptations.
  • Understanding this process can inform interventions for kidney failure patients.
  • Aims to guide patients toward comprehensive, active self-management for better outcomes.