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[Suffering in laryngeal cancer]
M M Zago1, E Barichello, S Hannickel
1Escola de Enfermagem de Ribeirão Preto-USP, Coordenadora do GARPO-Laringectomizados. mmfzago@glete.eerp.usp.br
Revista Da Escola De Enfermagem Da U S P
|June 7, 2002
Summary
Understanding the illness experience of laryngectomized patients and their families reveals a process of suffering and coping, influenced by cultural beliefs distinct from the biomedical model. This insight is crucial for effective rehabilitation strategies.
Area of Science:
- Medical Anthropology
- Oncology Nursing
- Patient Experience Research
Context:
- Laryngeal cancer significantly impacts patients and families, necessitating a deeper understanding of their lived experiences post-laryngectomy.
- Current healthcare approaches may not fully integrate the cultural and personal dimensions of illness for these patients.
Purpose:
- To explore and understand the illness experience of patients who have undergone laryngectomy due to laryngeal cancer and their families.
- To identify coping strategies and cultural interpretations of the illness process.
Summary:
- A narrative analysis of 14 laryngectomized patients and their families identified the illness experience as involving suffering, active coping, and survival evaluation.
- Findings highlight that patients' understanding of their illness is rooted in their cultural system, often diverging from the biomedical model used by healthcare professionals.
Impact:
- Emphasizes the need to consider patients' cultural frameworks in rehabilitation to improve care for laryngectomized individuals.
- Suggests a more holistic and culturally sensitive approach to patient care and support in oncology settings.