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Disclosure of misattributed paternity: issues involved in the discovery of unsought information
Linda Wright1, Susan MacRae, Debra Gordon
1Multi Organ Transplant Programme, Toronto General Hospital, University Health Network, Ontario, Canada. linda.wright@uhn.on.ca
Abstract:
Kidney transplantation from living donors is generally a safe, effective form of renal replacement therapy. When evaluating potential living donors and their intended recipients, a careful assessment process is followed in order to ensure that ethical standards are upheld. During this assessment, important medical information with serious consequences, which was not being sought as part of the donor/recipient evaluation, may be discovered. The information may or may not be relevant to the decision to donate. However, such a discovery raises the difficult questions of whether or not there is an obligation to disclose the information, to whom does the information belong, and what process should be used to resolve the issue? We present a case that forced us to confront these questions and raised issues of truth telling, autonomy, paternalism, confidentiality, and the nature of the relationship between patients and health care professionals.