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Living with multiple sclerosis: a Roy adaptation model-based study.

Barbara A Gagliardi1, Keville Frederickson, Deborah A Shanley

  • 1Rutgers, State University of New Jersey, Newark, USA.

Nursing Science Quarterly
|July 20, 2002
PubMed
Summary

People with multiple sclerosis (MS) adapt by making sense of their experiences across physiological, self-concept, role function, and interdependence adaptive modes, as guided by the Roy adaptation model. This qualitative study explored their lived realities over one year.

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Area of Science:

  • Nursing
  • Rehabilitation Science
  • Qualitative Health Research

Background:

  • Multiple Sclerosis (MS) presents complex challenges impacting daily living.
  • Understanding patient adaptation is crucial for effective nursing care and support.
  • The Roy Adaptation Model provides a framework for analyzing human responses to health changes.

Purpose of the Study:

  • To explore how individuals living with multiple sclerosis (MS) make sense of their lived experiences.
  • To identify adaptive themes within the context of the Roy Adaptation Model.
  • To gain insight into the long-term adaptation process in MS.

Main Methods:

  • Qualitative study employing semi-structured interviews.
  • Longitudinal data collection over one year with 18 participants diagnosed with MS.

Related Experiment Videos

  • Content analysis of interview transcripts, researcher logs, and analytic memos.

    • Main Results:

    • Five recurring themes emerged, aligning with the Roy Adaptation Model's adaptive modes.
    • Themes identified include: physiological changes ('we're not completely the same'), self-concept shifts ('how I view my future,' 'let me tell you about my feelings'), role function alterations ('how I see work'), and interdependence dynamics ('let me tell you about my life').

    Conclusions:

    • Individuals with MS actively engage in sense-making to adapt to their condition.
    • The Roy Adaptation Model effectively captures the multifaceted nature of adaptation in chronic illness.
    • Findings can inform nursing interventions to support MS patients' adaptive processes.