A child and parent illustrating non-compliance with treatment: understanding non-compliance with treatment
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Published on: August 21, 2015
Daniel Oppenheim1, Olivier Hartmann, Arthur Ablin
1Dept. of Pediatrics, and Unit of Psycho-Oncology, Institut Gustave-Roussy, 94805 Villejuif, France.
Insights
Treatment non-compliance in pediatric cancer patients is often due to parental ambivalence, not just the child. Psychotherapeutic interventions addressing family dynamics can improve treatment adherence and outcomes.
Area of Science:
- Pediatric Oncology
- Child Psychology
- Family Therapy
Background:
- Treatment non-compliance is a significant challenge in pediatric and adolescent healthcare.
- Understanding the complex factors contributing to non-compliance is crucial for effective treatment.
Observation:
- A 10-year-old boy with medulloblastoma refused high-dose chemotherapy and Autologous Bone Marrow Transplantation.
- Psychotherapeutic interviews involving the child, parents, and medical staff were conducted to address the non-compliance.
Findings:
- The child's non-compliance reflected his parents' underlying ambivalence and anxieties, despite initial informed consent.
- Parental fears, including the mother's conviction of the child's impending death, influenced their engagement with the treatment plan.
- Therapeutic discussions facilitated parental acceptance and role assumption, enabling the child to perceive their support for the treatment.
Implications:
- Pediatric treatment non-compliance arises from multifaceted interactions between the child, parents, and healthcare team, influenced by past and present experiences.
- Parental ambivalence, particularly when a child's life is at risk, can impair understanding and acceptance of therapy.
- Building trust and establishing clear therapeutic goals among the child, parents, and staff are essential to prevent and manage non-compliance, mitigating clinical, legal, and ethical concerns.
Background:
In children and adolescents non-compliance with treatment is a major concern. To shed light on its mechanisms, we present a family demonstrating non-compliance.
Procedure:
B, a 10 year-old boy, treated for medulloblastoma, refused high-dose chemotherapy and Autologous Bone Marrow Transplantation. Six psychotherapeutic interviews with B, his parents and staff resolved the causative issues.
Results:
B's behavior expressed his parents' ambivalence, despite their informed consent. Their reasons were conscious and unconscious, rational and irrational, linked to both the past and present experiences. The mother was convinced that he would die. The discussions helped both parents to assume their parental role, B perceived their ability to truly accept the treatment and support him.
Conclusions:
Non-compliance should not be viewed as a child's or parents' intrapsychic problem, but as the result of multi-determined interaction between the child, the parents, the staff interacting with present and past events. When the child's death is a possibility, the parents' ambivalence confuses their understanding and acception of the therapy. The development of confidence between the staff, the child and parents and clear agreement about the goals of therapy is necessary to avoid the occurrence of and escalation of non-compliance, which raises difficult clinical, legal and ethical questions.
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