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Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and
1Department of Ethics, Philosophy and History of Medicine, University Medical Center Nijmegen, The Netherlands.
Genetic Counseling (Geneva, Switzerland)
|August 2, 2002
Abstract:
Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure.