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Mitochondrial disorders: a potentially under-recognized etiology of infantile spasms

Namrata S Shah1, Wendy G Mitchell, Richard G Boles

  • 1Division of Neurology, Childrens Hospital Los Angeles, CA, USA.

Insights

Mitochondrial disorders are increasingly recognized as a cause of infantile spasms, particularly in cases with unclear origins. Metabolic testing in infants with infantile spasms often reveals signs of defective energy metabolism.

Area of Science:

  • Pediatric Neurology
  • Neurogenetics
  • Metabolic Disorders

Background:

  • Infantile spasms (IS) are a severe epilepsy syndrome in infants, often linked to underlying brain insults.
  • The etiology of IS is diverse, ranging from identifiable causes to cryptogenic cases where the origin is unknown.
  • Metabolic derangements are suspected contributors to IS, but their prevalence requires further investigation.

Purpose of the Study:

  • To investigate the etiology of infantile spasms in an unselected group of infants.
  • To assess the role of metabolic work-up, including mitochondrial DNA testing and body fluid metabolite analysis, in cryptogenic cases.
  • To determine the prevalence of defective energy metabolism in infants with infantile spasms.

Main Methods:

  • Retrospective review of 56 infants diagnosed with infantile spasms.
  • Etiological assessment including history, examination, and metabolic investigations (plasma lactate/pyruvate, urine organic acids).
  • Mitochondrial DNA testing for A3243G mutation in specific cases.

Main Results:

  • Of 56 infants, 34 had a symptomatic etiology, 1 was idiopathic, and 21 were cryptogenic.
  • Mitochondrial DNA testing identified the A3243G mutation in two monozygotic twins.
  • Metabolic testing suggested defective energy metabolism in the affected twins and 11 of 15 other cryptogenic cases.

Conclusions:

  • Mitochondrial disorders should be considered in the differential diagnosis of infantile spasms.
  • Abnormal energy metabolism appears prevalent in cryptogenic infantile spasms, indicating it may be a common cause or consequence.
  • Comprehensive metabolic work-up is crucial for identifying treatable metabolic causes of infantile spasms.

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