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Related Experiment Videos

Palliative care research: methodological and ethical challenges.

Ruth A Dean1, Susan E McClement

  • 1Faculty of Nursing, University of Manitoba, Winnipeg, Canada.

International Journal of Palliative Nursing
|September 25, 2002
PubMed
Summary
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Nursing research in palliative care is limited but essential. This article addresses ethical and methodological challenges in researching vulnerable palliative care patients, offering strategies for researchers.

Area of Science:

  • Palliative Care Nursing
  • Clinical Research Ethics
  • Methodology in Vulnerable Populations

Background:

  • Nursing research in palliative care remains underdeveloped.
  • Palliative care is emerging as a critical nursing specialty.
  • Research is vital for establishing a scientific foundation in palliative care.

Purpose of the Study:

  • Identify and discuss ethical challenges in palliative care research.
  • Examine methodological challenges in researching this population.
  • Provide strategies to overcome research barriers in palliative care.

Main Methods:

  • Literature review and expert discussion on ethical considerations.
  • Analysis of methodological issues specific to terminally ill patients.

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  • Synthesis of practical strategies for conducting research in palliative care settings.

    • Main Results:

    • Significant ethical hurdles exist, including informed consent and patient vulnerability.
    • Methodological difficulties involve participant recruitment, data collection, and maintaining patient dignity.
    • Proposed strategies focus on tailored approaches, interdisciplinary collaboration, and ethical oversight.

    Conclusions:

    • Addressing ethical and methodological challenges is crucial for advancing palliative care nursing research.
    • Implementing suggested strategies can enhance the quality and feasibility of research with vulnerable populations.
    • Further research is needed to build the scientific evidence base for palliative care nursing.