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Quality of life outcomes in congenital chronic intestinal pseudo-obstruction

Lenore Schwankovsky1, Hayat Mousa, Anita Rowhani

  • 1University of Ohio, Columbus, USA.

Digestive Diseases and Sciences
|October 2, 2002
PubMed

Insights

Children with chronic intestinal pseudo-obstruction experience reduced quality of life, including more pain and anxiety. Parental emotional status and care time are also negatively impacted, highlighting the need for supportive interventions.

Area of Science:

  • Pediatrics
  • Gastroenterology
  • Quality of Life Research

Background:

  • Chronic intestinal pseudo-obstruction (CIPO) is a rare gastrointestinal motility disorder.
  • Limited data exists on the quality of life (QoL) for children diagnosed with CIPO and their families.

Purpose of the Study:

  • To assess the QoL of children with congenital CIPO.
  • To evaluate the impact of CIPO on parental emotional status and caregiving burden.

Main Methods:

  • Retrospective chart review to identify pediatric patients with congenital CIPO.
  • Structured telephone interviews with parents utilizing the Child Health Questionnaire (CHQ).

Main Results:

  • Children with CIPO reported significantly less freedom from pain, depression, and anxiety compared to healthy controls and children with juvenile rheumatoid arthritis.
  • Parents of children with CIPO experienced poorer emotional status and required more time for caregiving.
  • QoL for children with CIPO was demonstrably lower than for healthy children or those with another chronic illness.

Conclusions:

  • Pediatric CIPO significantly impairs QoL for both affected children and their families.
  • Targeted management of chronic pain and reduction of family caregiving burden are crucial for improving outcomes.
  • Further research should focus on developing interventions to mitigate the psychosocial impact of CIPO.

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