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Published on: May 30, 2013
Parents' disclosure of HIV to their children
Martha B Lee1, Mary Jane Rotheram-Borus
1AIDS Institute Center for HIV Identification, Prevention, and Treatment Service University of California, Los Angeles 90024, USA.
Insights
Parents living with HIV disclosed their status more over time, especially to older children. However, disclosure was linked to increased problem behaviors and negative family events for adolescents.
Area of Science:
- Public Health
- Pediatric Psychology
- HIV/AIDS Research
Background:
- Understanding parental disclosure of HIV status is crucial for family well-being.
- Previous research has explored disclosure patterns but longitudinal impacts on adolescents require further investigation.
Purpose of the Study:
- To examine trends in HIV status disclosure by parents to their children over a 5-year period.
- To identify factors associated with parental disclosure of HIV status.
- To assess the impact of parental HIV status disclosure on adolescent children.
Main Methods:
- A longitudinal cohort study involving 301 parents living with HIV and 395 of their adolescent children.
- Data collected over 5 years, assessing disclosure trends, associated factors, and impacts on adolescent children.
- Analysis included examining disclosure rates, influencing factors (e.g., child age, parental health, social support), and adolescent outcomes.
Main Results:
- Disclosure rates increased over time, with higher rates for older versus younger children (75% vs. 40%).
- Mothers disclosed earlier and more often than fathers, and more frequently to daughters than sons.
- Disclosure was associated with parental poor health, stressful life events, larger social networks, and perceived child stigma; it correlated with increased adolescent problem behaviors and negative family events.
Conclusions:
- Parental HIV status disclosure patterns are comparable to those for other chronic illnesses.
- Clinical support is essential for guiding parents in making individualized disclosure decisions.
- The study highlights potential adverse outcomes for adolescents following disclosure, necessitating careful management.
Objective:
Parents' disclosure of their HIV serostatus to all of their children is described over time and the impact of disclosure is examined for their adolescent children. DESIGN A representative cohort of parents living with HIV (n = 301) and their adolescent children (n = 395) was recruited and assessed repeatedly over 5 years.
Methods:
Disclosures by parents living with HIV of their HIV status to their children were examined in three ways: (i) trends in disclosure over 5 years to all children; (ii) factors associated with parental disclosure; and (iii) the impact of disclosure on adolescent children (not younger children).
Results:
Parents were more likely to disclose to older (75%) than to younger children (40%). Mothers were more likely to disclose earlier than fathers and they disclosed more often to their daughters than to their sons. Parents were more likely to disclose over time to children of all ages; disclosure did not vary according to parents' ethnicity, socio-economic status, self-esteem, or mental health symptoms. Disclosure was significantly more common among parents with poor health, more stressful life events, larger social networks, and those who perceived their children experiencing more HIV-related stigma. Over time, poor health status and a self-destructive coping style were associated with higher rates of disclosure. Parental disclosure was significantly associated with more problem behaviors and negative family life events among their adolescent children.
Conclusion:
Parental disclosure of HIV status is similar to disclosures by parents with other illnesses. Clinicians must assist patients to make individual decisions regarding disclosure.
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