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Who should pay for bad genes?

Eric Rakowski1

  • 1School of Law, University of California, Berkeley (Boalt Hall), USA.

California Law Review
|November 20, 2002
PubMed
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Parents are increasingly able to influence their children's genes. This article argues parents should be responsible for genetic disadvantages, potentially through a compulsory insurance plan, and do not wrong children by allowing birth with impairments.

Area of Science:

  • Bioethics
  • Genetics
  • Distributive Justice

Background:

  • Parents can influence children's genetic makeup through partner choice, gamete/embryo selection, and genetic modification.
  • Technological advancements increase parental control over offspring's genetic composition.

Purpose of the Study:

  • To discuss parental obligations regarding children's genes in a just society.
  • To explore the ethical and legal implications of genetic selection and modification.
  • To examine parental responsibility for genetic disadvantages and the concept of wrongful birth.

Main Methods:

  • Philosophical analysis of parental obligations and distributive justice.
  • Ethical argumentation concerning genetic interventions and parental responsibility.
Keywords:
Analytical ApproachGenetics and ReproductionHealth Care and Public Health

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  • Legal and moral inquiry into the concept of harm in the context of genetic impairments.

    • Main Results:

    • Parents should be responsible for redressing genetic disadvantages arising from their voluntary actions.
    • A compulsory insurance plan is proposed as a fair mechanism for compensating genetically disadvantaged children.
    • Parents do not wrong a child by allowing its birth with a genetic impairment, but must bear associated costs.

    Conclusions:

    • Parental responsibility for genetic outcomes is crucial for a just society.
    • The state may implement measures to support parents in avoiding the birth of children with severe impairments.
    • Ethical frameworks must adapt to the evolving landscape of reproductive technologies and genetic interventions.