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The Washington state "name-to-code" HIV reporting system: a public health perspective
Robert W Wood1, Sharon G Hopkins, John F Peppert
1HIV/AIDS Control Program, Public Health-Seattle & King County, Seattle, Washington, USA.
Journal of Public Health Management and Practice : JPHMP
|December 5, 2002
Summary
Public health officials recommended reporting human immunodeficiency virus (HIV) infection by name in 1996. After significant debate and opposition to unique identifiers, a name-to-code compromise was adopted in Washington State.
Area of Science:
- Public Health
- Epidemiology
- Health Policy
Background:
- Advances in antiretroviral therapy and HIV understanding prompted a 1996 recommendation to add asymptomatic HIV infection to reportable diseases in Washington State.
- The proposal to report HIV cases by name generated significant controversy and debate among stakeholders.
- Early suggestions for a "name-to-code" reporting system were not immediately adopted.
Purpose of the Study:
- To describe the process of adopting HIV case reporting in Washington State.
- To analyze the nature of the implemented HIV reporting system.
- To explain the resolution of the controversy surrounding HIV reporting.
Main Methods:
- Historical analysis of public health policy development.
- Examination of stakeholder engagement and opposition.
- Review of the implemented HIV reporting system's structure and function.
Main Results:
- A two-year controversy ensued following the 1996 recommendation for name-based HIV reporting.
- Substantial opposition from public health, medical, and community stakeholders emerged against unique identifier reporting.
- A "name-to-code" compromise was eventually accepted, resolving the reporting dispute.
Conclusions:
- The adoption of HIV reporting in Washington State involved a complex process influenced by public and professional opinion.
- Effective public health policy requires balancing reporting requirements with stakeholder concerns and community trust.
- The resolution highlights the importance of compromise in public health initiatives involving sensitive health information.
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