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[Creating a specific quality-of-life questionnaire in patients with glaucoma: item generation].
J F Rouland1, P Denis, A Béchetoille
1Hôpital Claude Huriez, Lille.
Journal Francais D'Ophtalmologie
|December 10, 2002
Summary
Researchers developed the Glaucoma-specific Quality of Life (Glau-QoL) questionnaire to assess patient perspectives in glaucoma care. This tool aims to provide a comprehensive measure for clinical and research applications in ophthalmology.
Area of Science:
- Ophthalmology
- Psychometrics
- Health Services Research
Background:
- Health-Related Quality-of-Life (HRQoL) measures are crucial in chronic disease research.
- Patient-reported outcomes are increasingly integrated into evidence-based medicine.
- A specific HRQoL measure for ophthalmic diseases, particularly glaucoma, is lacking.
Purpose of the Study:
- To develop the first Glaucoma-specific Quality of Life (Glau-QoL) questionnaire.
- To create a comprehensive, practical, and validated tool for researchers and physicians.
- To capture the patient's perspective on the impact of glaucoma on daily life.
Main Methods:
- Literature review and concept collection from existing tools.
- Expert committee (clinicians, methodologists) involvement.
- Qualitative interviews with 22 glaucoma patients, followed by cognitive debriefing with 7 patients.
- Development of a pilot questionnaire with 151 items across 5 sections.
Main Results:
- A pilot questionnaire (Glau-QoL) was developed, containing 151 items.
- Items are grouped into 5 sections: vision problems/treatment, daily activities, self-expression, mood, and other.
- The pilot questionnaire was well-received by patients, with completion times between 14-35 minutes.
Conclusions:
- The initial stage of developing the Glau-QoL questionnaire is complete.
- The pilot questionnaire covers relevant concepts for glaucoma patients.
- Further steps include item reduction and psychometric validation of the Glau-QoL.