Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Cystic fibrosis: psychological issues.

I Götz1, M Götz

  • 1University Children's Hospital, Währinger Gürtel 18-20, Vienna, A - 1090, Austria. Ilse.Goetz@akh-wien.ac.at

Paediatric Respiratory Reviews
|January 18, 2003
PubMed
Summary

Cystic Fibrosis (CF) diagnosis profoundly impacts families, requiring adaptation. Multidisciplinary support aids patients and parents in managing this chronic condition and maintaining quality of life.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Phylogeny and taxonomy of <i>Acer</i> powdery mildews, including genera <i>Sawadaea</i> and <i>Takamatsuella</i> (<i>Erysiphaceae, Ascomycota</i>).

Studies in mycology·2026
Same author

[Moral polygon of medical practice: A mathematical model for the visualisation and quantification of moral and ethical considerations in medicine].

Wiener medizinische Wochenschrift (1946)·2025
Same author

Phylogeny and taxonomy of <i>Cercospora malkoffii</i> (<i>Mycosphaerellaceae</i>).

Fungal systematics and evolution·2025
Same author

EnGraft: a multicentre, open-label, randomised, two-arm, superiority study protocol to assess bioavailability and practicability of Envarsus® versus Advagraf™ in liver transplant recipients.

Trials·2023
Same author

On the adsorption and reactivity of element 114, flerovium.

Frontiers in chemistry·2022
Same author

Zeitschrift fur Gastroenterologie·2022

Area of Science:

  • Pediatric Medicine
  • Psychology
  • Genetics

Background:

  • Cystic Fibrosis (CF) diagnosis is a life-altering event for parents, triggering emotional distress and necessitating significant life adjustments.
  • The disease impacts not only the individual patient but the entire family system, introducing biopsychosocial stressors.
  • Family dynamics are altered by CF, potentially straining resources even with dedicated care.

Purpose of the Study:

  • To explore the psychological and familial impact of a child's Cystic Fibrosis diagnosis.
  • To highlight the importance of early and continuous multidisciplinary support for families affected by CF.
  • To examine the adaptation process and coping mechanisms of families managing CF.

Main Methods:

  • Qualitative analysis of parental experiences and family system changes.
  • Review of multidisciplinary care models for chronic pediatric conditions.
  • Assessment of psychological support strategies in CF management.

Main Results:

  • Initial parental reactions include shock, denial, sadness, and anger, followed by a period of adaptation.
  • Comprehensive support from multidisciplinary teams, including psychological services, facilitates better physical, mental, and social functioning.
  • While CF alters family structures, it does not inevitably lead to long-term dysfunction, with families often demonstrating remarkable resilience.

Conclusions:

  • Early and sustained multidisciplinary support is crucial for navigating the challenges of a CF diagnosis.
  • Acknowledging and supporting the immense efforts of families is vital for patient well-being.
  • Despite the complexities of CF, individuals can lead fulfilling lives, with advancements like gene therapy offering future hope.

Related Experiment Videos