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Published on: December 20, 2011
Not knowing--the problem of pain in children with severe neurological impairment
Anne Hunt1, Kiki Mastroyannopoulou, Ann Goldman
1Royal College of Nursing Institute, Radcliffe Infirmary, Woodstock Road, OX2 6HE, Oxford, UK. anne.hunt@rcn.org.uk
Insights
Optimal pain assessment in children with severe neurological impairment requires understanding the child, similar conditions, and medical science. Integrated care models and an intersubjective approach are crucial for effective pain management.
Area of Science:
- Pediatric Pain Management
- Neurological Impairment
- Clinical Decision-Making
Background:
- Assessing pain in children with severe to profound neurological impairment presents unique challenges.
- Existing care systems may fragment, hindering effective pain management.
- A deeper understanding of parental and professional decision-making is needed.
Purpose of the Study:
- To explore the diagnostic and clinical decision-making processes for pain in children with severe to profound neurological impairment.
- To identify key knowledge domains essential for optimal pain assessment and management.
- To propose a model for integrated care and pain assessment.
Main Methods:
- Grounded theory approach.
- Exploration of decision-making processes.
- Analysis of knowledge requirements for pain assessment.
Main Results:
- Three essential forms of knowledge identified: knowing the child, familiarity with similar conditions, and scientific knowledge.
- Fragmented care systems can compromise pain relief.
- A model integrating child-specific, population-specific, and scientific knowledge is proposed.
Conclusions:
- Optimal pain assessment and management require a multi-faceted knowledge base.
- Integrated care models are superior to fragmented systems for pain management.
- An intersubjective attitude is vital for accurate pain assessment in this population.
Abstract:
This study uses a grounded theory approach to explore the diagnostic and clinical decision-making processes used by parents and healthcare professionals in relation to pain in children with severe to profound neurological impairment. Three forms of knowledge are required for optimal pain assessment and management (1) knowing the child, (2) familiarity with children with the same or similar conditions and (3) knowing the science. Pain relief can be compromised by systems of care that fragment rather than integrate care. A model which integrates knowledge of child, population and science is proposed together with an intersubjective attitude to assessing pain.
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