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Oscillating between hope and despair--a qualitative study.

C Sällfors1, A Fasth, L R M Hallberg

  • 1The Nordic School of Public Health, Göteborg, Sweden. christina.sallfors@telia.com

Child: Care, Health and Development
|February 6, 2003
PubMed
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Children with juvenile chronic arthritis (JCA) experience chronic pain that significantly disrupts their daily lives, leading to emotional distress and social limitations. Understanding these psychosocial challenges is crucial for effective healthcare and rehabilitation.

Area of Science:

  • Pediatric Rheumatology
  • Psychosocial Health
  • Chronic Pain Management

Background:

  • Juvenile chronic arthritis (JCA) significantly impacts children's quality of life.
  • Chronic pain in JCA presents complex psychosocial challenges for affected children.
  • Limited understanding exists regarding the lived experiences of children with JCA and chronic pain.

Purpose of the Study:

  • To explore the life situation and psychosocial processes of children living with chronic pain due to JCA.
  • To gain in-depth insights into the subjective experiences of pediatric patients with JCA.

Main Methods:

  • Qualitative study employing open, in-depth interviews with 22 children diagnosed with JCA.
  • Interviews were transcribed verbatim and analyzed using the comparative method of grounded theory.

Related Experiment Videos

  • Participant age range was 6-17 years, capturing a broad developmental spectrum.

    • Main Results:

    • A core theme of 'oscillating between hope and despair' emerged, linked to disturbed daily routines, dependency on care, and future uncertainty.
    • Children's pain experiences were intertwined with disruptions in daily life, reliance on treatments and social support, and ambivalent environmental responses.
    • Chronic pain and disease management dominated children's lives, resulting in restricted social participation and goal attainment.

    Conclusions:

    • Chronic pain is a major challenge for children with JCA, necessitating its consideration in healthcare.
    • The findings highlight the interplay between psychological and physiological pain experiences, influenced by environmental interactions.
    • This research offers a deeper understanding of the challenges faced by children with JCA, informing the development of improved rehabilitation strategies.