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Published on: September 19, 2019
End-of-life issues of children
1Riley Hospital for Children, 702 Barnhill Drive, Room 2720, Indianapolis, IN 46250, USA. Dgowan@iupui.edu
Insights
Pediatric end-of-life care involves complex decisions regarding hospice versus palliative care for children with life-threatening illnesses. This review explores key issues and offers strategies for optimal care.
Area of Science:
- Pediatric oncology
- Palliative care
- Bioethics
Background:
- Healthcare providers frequently encounter end-of-life care decisions for children with cancer and other life-threatening illnesses.
- Ensuring optimal care for these children throughout their illness trajectory, including the end-of-life phase, is paramount.
Purpose of the Study:
- To review the primary challenges and considerations in pediatric end-of-life care.
- To explore the ongoing debate surrounding hospice care versus palliative care for children.
- To provide practical ideas for healthcare providers caring for children with life-threatening conditions.
Main Methods:
- Literature review of current issues in pediatric end-of-life care.
- Analysis of the hospice vs. palliative care debate in pediatric settings.
- Discussion of relevant laws and reimbursement guidelines.
Main Results:
- Significant controversy exists regarding the optimal approach: hospice care or palliative care for children.
- Legal frameworks and guidelines influence symptom management and financial reimbursement for services.
- Effective care requires addressing complex ethical and practical considerations.
Conclusions:
- Careful consideration of available options is essential for providing the best end-of-life care for children.
- Understanding the nuances of hospice and palliative care is crucial for providers.
- This review offers insights to improve care for critically ill children and their families.
Abstract:
When working with children who have cancer or other life-threatening illnesses, providers frequently deal with end-of-life concerns. Children deserve the best of care at all times, and the end-of-life is no exception. Controversy surrounds the debate between use of hospice care or palliation with children. Laws and guidelines dictate how we can treat symptoms and expect reimbursement. This article will review some of the main issues and give ideas for caring for children who deal with life-threatening illness.
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