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Medical privacy and research.

N M Bradburn1

  • 1Harris Graduate School of Public Policy Studies, University of Chicago, USA.

The Journal of Legal Studies
|March 27, 2003
PubMed
Summary
This summary is machine-generated.

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Electronic medical records raise privacy concerns, but this is more about social norms governing doctor-patient relationships than privacy itself. Anonymized data from medical records can be used for research without additional consent.

Area of Science:

  • Medical Informatics
  • Bioethics
  • Health Law

Background:

  • Electronic medical records (EMRs) are prevalent, leading to large, shareable medical databases.
  • The ease of sharing EMRs raises public concerns about privacy and data control.
  • Existing social norms around the doctor-patient relationship are challenged by EMRs.

Purpose of the Study:

  • To reframe privacy concerns related to EMRs.
  • To examine the role of social norms in the use of medical information.
  • To clarify consent requirements for using de-identified medical data in research.

Main Methods:

  • Conceptual analysis of privacy issues versus social norm violations.
  • Examination of existing ethical guidelines and legal frameworks for medical data.
Keywords:
Analytical ApproachBiomedical and Behavioral ResearchLegal ApproachProfessional Patient Relationship

Related Experiment Videos

  • Review of informed consent principles in research.

    • Main Results:

    • Concerns over EMRs are primarily related to the erosion of established social norms, not inherent privacy breaches.
    • Anonymized data elements derived from medical records are no longer individually identifiable.
    • Information gathered through standard care or consented research does not require new consent for de-identified research use.

    Conclusions:

    • The perceived threat to privacy from EMRs is better understood as a challenge to social norms governing medical information.
    • De-identification transforms personal medical information into research data, mitigating privacy risks.
    • Existing consent for care or research is sufficient for using de-identified data, preserving the integrity of the doctor-patient relationship.