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Disability advocacy organizations: a descriptive framework.

M A McColl1, W Boyce

  • 1Queen's University, Kingston, ON, Canada K7L-3N6. mccollm@post.queensu.ca

Disability and Rehabilitation
|May 15, 2003
PubMed
Summary
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This study developed a framework to analyze how disability advocacy organizations participate in policy. It identified five key dimensions—purpose, tactics, view of disability, membership, and resources—to understand their organizational characteristics and policy success.

Area of Science:

  • Social Sciences
  • Public Policy
  • Disability Studies

Background:

  • Policy advocacy is crucial for advancing the rights and inclusion of people with disabilities.
  • Understanding the organizational dynamics of disability advocacy groups is essential for effective policy change.
  • Previous research has not comprehensively analyzed the participation of disability organizations in policy advocacy over time.

Purpose of the Study:

  • To develop a descriptive framework for analyzing the participation of people with disabilities in policy advocacy.
  • To provide a tool for discussing and comparing the characteristics of disability advocacy organizations.
  • To facilitate the examination of the relative success of policy participation by these organizations.

Main Methods:

  • Qualitative research design utilizing interviews with key informants.

Related Experiment Videos

  • Analysis of organizations involved in policy advocacy for people with disabilities in Canada (1981-present).
  • Data collection focused on three specific policy cases: Charter of Rights and Freedoms (1982), Canada Clause (1991), and Ontario Consent to Treatment bills (1993-1995).

    • Main Results:

    • Identified three ideological dimensions: purpose, tactics, and view of disability.
    • Identified two practical dimensions: membership and resources.
    • Detailed descriptions of each dimension are provided, illustrated with interview quotes.

    Conclusions:

    • The five identified dimensions form a robust framework for discussing and comparing disability advocacy organizations.
    • This framework aids in evaluating the effectiveness of policy participation for issues impacting people with disabilities.
    • The study offers insights into the organizational structures that contribute to successful advocacy efforts.