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[Euthanasia and caring for the dying in pediatric oncology]
1Abteilung Kinderheilkunde I, Universitätsklinik für Kinderheilkunde, Tübingen.
Insights
Pediatric oncology advancements still leave a third of children with cancer facing death. This necessitates comprehensive care strategies for dying children and their families, focusing on open communication and pain management, ideally at home.
Area of Science:
- Pediatric Oncology
- Palliative Care
- Childhood Cancer Research
Context:
- Despite advances in pediatric oncology, a significant proportion of children with cancer still succumb to the disease.
- The responsibility of healthcare providers extends beyond curative treatment to encompass end-of-life care for pediatric patients.
- There is a growing need to address the emotional and physical needs of children with terminal cancer and their families.
Purpose:
- To outline essential concepts for managing the dying process in pediatric oncology.
- To emphasize the importance of intensive, family-centered care during a child's final stages of life.
- To advocate for home-based palliative care, including effective pain management and open communication.
Summary:
- Pediatric cancer care must evolve to include comprehensive end-of-life support, acknowledging that a third of children still die from malignancies.
- Open communication and honesty with children and families are paramount, fostering trust and facilitating coping during difficult times.
- Effective pain management is achievable in most cases, and the desire for euthanasia often signals unmet needs or despair, not a request for assisted death.
Impact:
- Improved quality of life for children with terminal cancer and their families through dedicated palliative care.
- Enhanced ability of healthcare professionals to provide compassionate and effective end-of-life support in pediatric oncology.
- Development of best practices for managing childhood cancer deaths, prioritizing patient comfort and family well-being.
Abstract:
During the last 30 years pediatric oncology has developed therapeutic schemes for all kinds of tumors. Nevertheless, a third of the children suffering from malignancies have still to die. Therefore it is necessary to develop concepts, how to deal with the death of children and how to care for them and their families during the dying process, because the responsibility for these children does not end at the point of finishing therapy, but at the time of their death. Especially during this last part of life these children and their families need an extremely intensive care. Since most of the children want to die at home, we must also be able to care for them there, possibly in cooperation with a local colleague. This, of course, requires an adequate therapy against pain which is possible in most cases. The basement for an optimal care is to be very open to the children. If this openness is established right at the beginning of therapy it will later serve to cope with difficult situations. "Never to lie" is the most important principle. If the patients are not left alone during the dying process the claim for a final injection will be an exception. However, if euthanasia is required, it is rather an expression of despair and a cry for help. The application of very high doses of medicine, necessary in order to prevent pain, might lead to a shortening of life time. This is neither killing on demand nor euthanasia.
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