Helping children speak up in the health service

Màrie Horstman1, Angela Bradding

  • 1School of Paediatric Nursing and Child Health, Faculty of Health, South Bank University, London SE1 0AA, UK.

Insights

Children perceive healthcare professionals and environments differently when sick. This study explored chronically sick children's views on care, information needs, and environments, offering insights for improved pediatric healthcare.

Area of Science:

  • Pediatric Healthcare
  • Child Psychology
  • Qualitative Research Methods

Background:

  • Understanding children's perspectives on healthcare is crucial for improving care quality.
  • Previous research has explored children's experiences, but a detailed focus on chronically sick children's perceptions of care environments and information needs is warranted.

Purpose of the Study:

  • To investigate perceptions of healthcare professionals, care environments, and information needs among chronically sick children (aged 6-10).
  • To compare these perceptions with those of healthy children.
  • To gather qualitative data through drawings and open-ended tasks to inform recommendations for pediatric care.

Main Methods:

  • A qualitative study involving 99 children (50 hospitalised, 49 community-based).
  • Utilized the 'draw and write' technique and an open-ended stimulus task.
  • Included chronically sick children (predominantly with cancer) and a healthy comparison group.

Main Results:

  • Children's views on care environments and healthcare professionals were captured through drawings and comments.
  • Identified specific information needs of sick children and preferred sources of information.
  • Qualitative data provided valuable insights into children's experiences within healthcare settings.

Conclusions:

  • The study generated recommendations for improving the care of sick children based on their expressed views.
  • The 'draw and write' technique and open-ended stimulus task proved effective for gathering child-centered data.
  • Findings can aid in developing better audit tools and educational materials for healthcare providers.

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