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Updated: Sep 21, 2026

Murine Ileocolic Bowel Resection with Primary Anastomosis
Published on: October 29, 2014
Bowel function in Danish children with myelomeningocele
Klaus Krogh1, Harald R Lie, Niels Bilenberg
1Surgical Research Unit, Department of Surgery L, Aarhus University Hospital, Denmark. www.krogh@akh.aaa.dk
Insights
Bowel problems are common in children with Myelomeningocele (MMC), significantly impacting their quality of life as they age. Many children require interventions for defecation, highlighting a need for better bowel management education.
Area of Science:
- Pediatric Neurology
- Gastroenterology
- Rehabilitation Medicine
Background:
- Spinal cord lesions, such as those in Myelomeningocele (MMC), are known to disrupt colorectal motility, anorectal sensation, and anal sphincter function.
- These disruptions can lead to significant challenges in bowel management for affected children.
Purpose of the Study:
- To characterize the bowel habits and associated challenges in children diagnosed with Myelomeningocele (MMC).
- To assess the impact of bowel dysfunction on the quality of life in this pediatric population.
Main Methods:
- A questionnaire-based study was conducted among Danish children aged 2-18 years with Myelomeningocele (MMC).
- Data collected included demographics, neurological status, bowel function details, and the Child Behaviour Checklist.
- Response rate was 60% (125 out of 208 patients).
Main Results:
- Abnormal defecation was reported by 68% of respondents.
- Interventions like digital stimulation, suppositories, and enemas were used by 20%, 10%, and 28% respectively.
- Faecal incontinence was reported by 14% daily and 14% weekly in children aged four years and older.
- Bowel dysfunction impacted social activities or quality of life in 40% of children, with increasing severity in older children.
Conclusions:
- Colorectal problems are highly prevalent in children with Myelomeningocele (MMC).
- The impact of bowel dysfunction on quality of life intensifies with age.
- There is a significant unmet need for comprehensive bowel management information for both parents and children.
Abstract:
Spinal cord lesions affect colorectal motility, anorectal sensation and anal sphincter function. The aim of this study was to describe bowel habits in children with Myelomeningocele (MMC). Questionnaires describing age, gender, neurological deficit, bowel function and the Child Behaviour Checklist were send to all Danish children with MMC aged 2-18 years. Among 208 patients, 125 (60%; 63 girls) responded. Defecation was described as abnormal in 85 (68%). Digital stimulation or evacuation were used by 25 (20%), suppositories by 13 (10%) and enemas 35 by (28%). Time spent at each defecation was > 30 minutes in 29 (24%). Among children aged four years or more (n = 100), daily faecal incontinence was reported by 14 (14%) and weekly incontinence by another 14 (14%). Bowel dysfunction had some or major impact on social activities or quality of life in 48 (40%). Time spent on defecation increased and the impact on quality of life became more severe with advancing age. Information about bowel management had been given to 56% of parents and 9% of children. In conclusion colorectal problems are common in children with MMC and their impact of quality of life becomes more severe as the children grow older. There is an unfullfilled need for information about bowel management.
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