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Surviving Ebola: understanding experience through artistic expression.

R C Locsin1, A Barnard, A G Matua

  • 1Christine E. Lynn College of Nursing, Florida Atlantic University, 777 Glades Road, Boca Raton, FL 33431-0091, USA. locsin@fau.edu

International Nursing Review
|August 22, 2003
PubMed
Summary

Survivors of Ebola Hemorrhagic Fever (Ebola) experience a dual reality of constant fear and persistent hope. Understanding these experiences is crucial for compassionate nursing care.

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Area of Science:

  • Qualitative Health Research
  • Phenomenology
  • Patient Experience Studies

Background:

  • Limited understanding of survivors' experiences with life-threatening illnesses like Ebola Hemorrhagic Fever (Ebola).
  • Need for deeper insights into the psychological and emotional impact of surviving severe diseases.

Purpose of the Study:

  • To explore and understand how Ebola survivors perceive their survival experience.
  • To identify the conceptions survivors hold about living through a life-threatening illness.

Main Methods:

  • Phenomenographic approach utilizing drawings and interviews.
  • Data collected from eleven Ebola survivors.
  • Analysis focused on identifying descriptive categories of understanding.

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Main Results:

  • Identified four distinct conceptions of survival: escape, hope, persistence, and fear.
  • Developed an outcome space illustrating the paradoxical experience of "living in fear" and "living in constant hopefulness."
  • Highlighted the concurrent experience of fear and hope in Ebola survivors' narratives.

Conclusions:

  • Understanding survivor experiences is vital for nursing practice.
  • Insights gained can enhance compassionate and competent nursing care for individuals recovering from life-threatening illnesses.
  • Emphasizes the importance of acknowledging the complex emotional landscape of survivors.