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[Development of WHOQOL spirituality, religiousness and personal beliefs module]
Marcelo Pio da Almeida Fleck1, Zulmira Newlands Borges, Gustavo Bolognesi
1Departamento de Psiquiatria e Medicina Legal, Faculdade de Medicina, Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brasil. mfleck.voy@zaz.com.Br
Objectives:
To describe the development of the "spirituality, religiousness, and personal beliefs" for the WHOQOL-SRBP instrument, and to report the main findings of research conducted with focus groups composed of subjects representative of the most common religious practices, patients, and healthcare professionals.
Methods:
The several stages of the development of the WHOQOL-SRBP instrument are described: literature review, focus groups, elaboration of national questions, elaboration of consensual items, pilot-study development, pilot-study application, question performance analysis, development of the definitive instrument, and field testing. The focus group stage was conducted in Porto Alegre, Southern Brazil, and included 15 groups (n=142). These included separate groups for healthcare professionals, acute, chronic, and terminal patients, religious groups (Catholics, Evangelicals, Afro-Brazilians, and Spiritualists), and atheists. Each group discussed facets suggested by a group of "experts", as well as any further dimensions spontaneously raised by group participants.
Results And Conclusions:
The focus group technique proved itself adequate for the collection of different opinions from the participants, allowing for the testing of the hypotheses proposed by the researchers, redirecting and/or broadening previously established concepts. In addition, it highlighted the importance of the discussion of the spiritual dimension for patient's lives.