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Well-being of children with chronic illness. A population-based study in a Swedish primary care district
1Department of Community Health Sciences, University of Lund, Dalby, Sweden.
Insights
Chronically ill children experience lower well-being and more emotional problems. Enhancing teacher knowledge of childhood disorders and their psychosocial impact is crucial for better support.
Area of Science:
- Pediatric Health
- Child Psychology
- Public Health
Background:
- 8% of children in Dalby primary care district were identified as chronically ill.
- Previous research highlighted the need to understand the impact of chronic illness on children's well-being.
- Parental questionnaires were utilized to assess the psychosocial effects of chronic conditions.
Purpose of the Study:
- To investigate the impact of chronic illness on the well-being of children in school and pre-school settings.
- To compare the experiences of chronically ill children with their healthy peers.
- To identify specific challenges faced by chronically ill children, including social interactions and emotional health.
Main Methods:
- A comparative study involving 98 index children (chronically ill) and 168 control children (healthy).
- Parental questionnaires were administered to gather data on children's comfort, well-being, and school experiences.
- Socio-demographic variables were analyzed to ensure comparability between responders and non-responders.
Main Results:
- Chronically ill children reported lower comfort and well-being in school and pre-school compared to controls.
- Children with physical disabilities were more likely to receive special remedial education.
- Chronically ill children experienced more bullying, fewer peer contacts, and increased emotional problems.
Conclusions:
- Significant psychosocial challenges exist for chronically ill children in educational and healthcare settings.
- There is a need for increased teacher awareness and knowledge regarding chronic childhood disorders and their consequences.
- Improved recognition and support for the psychosocial needs of chronically ill children within schools and child health services are advocated.
Abstract:
According to a previous study, 8% of all children in Dalby primary care district were chronically ill. The impact of the illness on the children's well-being was investigated using parental questionnaires. No difference in socio-demographic variables was found between responders (70%) and non-responders. The study comprised 98 index and 168 control children. Comfort and well-being in school and pre-school were lower among the index than among the control children and lower among the index children in normal compared with special schools. According to the parents many teachers had insufficient knowledge of disorders/handicaps. Children with a physical disability more often had special remedial education compared with healthy children. The chronically ill children were bullied more often, had fewer contacts with peers and more emotional problems than the control group. Improved knowledge of chronic childhood disorders/disabilities and recognition of the psychosocial consequences at school/pre-school and in the child health services is advocated.
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