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Cancer patients' preferences for written prognostic information provided outside the clinical context
H M Davey1, P N Butow, B K Armstrong
1School of Public Health, Edward Ford Building - A27, The University of Sydney NSW 2006, Australia. daveyh@health.usyd.edu.au
British Journal of Cancer
|October 17, 2003
Summary
Cancer patients prefer clear, positive written prognostic information. Understanding statistical data improved with plain language, but hope and information needs can conflict.
Area of Science:
- Oncology
- Health Communication
- Patient Information
Background:
- Written prognostic information for cancer patients is crucial but patient preferences are under-researched.
- Understanding statistical survival data presents challenges for many cancer patients.
- A state cancer organization sought to improve its patient information resources.
Purpose of the Study:
- To assess cancer patients' understanding of statistical prognostic information.
- To determine patient preferences for the framing, content, and presentation of written survival data.
- To evaluate the acceptability of a card sort method for gathering these preferences.
Main Methods:
- Semi-structured interviews were conducted with cancer patients.
- A card sort activity was used to assess understanding and preferences.
- Qualitative analysis of interview transcripts was performed.
Main Results:
- Patients improved understanding of statistical concepts with plain language explanations.
- Patients favored positive, relevant, and clear written information (booklets, internet).
- Patient age, time since diagnosis, coping ability, and source credibility influenced preferences.
Conclusions:
- Written prognostic information should balance hope with the need for clear understanding.
- Patient characteristics significantly impact preferences for prognostic information.
- These findings are vital for developing effective patient-centered written prognostic materials.