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Design, Fabrication, and Administration of the Hand Active Sensation Test (HASTe)
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The Hungarian HAE experience

Henriette Farkas1, Lilian Varga

  • 1Allergy and Angiooedema Outpatients Clinic, Kútvölgyi Clinical Center, Semmelweis University, Kútvölgyi út 4, H-1125 Budapest, Hungary. farkash@kut.sote.hu

Transfusion and Apheresis Science : Official Journal of the World Apheresis Association : Official Journal of the European Society for Haemapheresis
|October 24, 2003
PubMed

The Hungarian HAE Center was established in 1994, in Budapest. Assignments of the Center include diagnostic work-up of patients with angioedema; developing national guidelines for the recognition, treatment of patients with HAE; maintaining the registry, patient education, supply patients with info-card and C1-INH concentrate, follow-up of patients, telephone 'hot-line' service, under- and postgraduate education as well as pursues scientific activities. Established in 1996, the Hungarian HAE Patients' Association a foundation to support HAE patients; and a Hungarian HAE website. Hungarian HAE Working Group is the main organizer of the European C1-INH Deficiency Workshops to be held at two-year intervals from 1999.

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