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Published on: March 30, 2014
Pediatric HIV medication adherence: the views of medical providers from two primary care programs
Elizabeth Brackis-Cott1, Claude Ann Mellins, Elaine Abrams
1Department of Psychiatry, Columbia University, USA. eb372@columbia.edu
Insights
Pediatric adherence to antiretroviral therapy (ART) is challenging due to complex regimens and family life issues. Healthcare providers face difficulties implementing communication strategies to improve ART adherence in children with HIV.
Area of Science:
- Pediatric infectious diseases
- HIV/AIDS management
- Antiretroviral therapy adherence
Background:
- Understanding challenges in pediatric HIV care.
- Importance of adherence to antiretroviral therapy (ART) in children.
- Role of healthcare providers in managing pediatric HIV.
Purpose of the Study:
- To explore medical providers' perspectives on ART adherence in HIV-infected children.
- To identify barriers and facilitators to adherence from a provider's viewpoint.
- To examine the influence of the provider-patient/family relationship on adherence.
Main Methods:
- Qualitative study involving medical providers (physicians and nurses) from primary care programs.
- Structured questionnaires and individual interviews were used to gather data.
- Focus on providers working with perinatally HIV-infected children.
Main Results:
- Providers cited complex treatment regimens and limited options as major adherence challenges.
- Family socioeconomic factors (poverty, mental health, substance use) significantly impact adherence.
- Providers recognized communication strategies but struggled with consistent practical implementation.
Conclusions:
- Pediatric ART adherence is intrinsically linked to the child's family life and presents long-term challenges.
- Healthcare providers are crucial in addressing adherence issues but face systemic and familial obstacles.
- Improved support for families and enhanced provider communication skills are essential.
Introduction:
The purpose of this study was to examine medical providers' views from two primary care programs regarding adherence to antiretroviral therapy among HIV-infected children.
Method:
Ten medical providers (five physicians and five registered nurses) working with perinatally HIV-infected children completed a structured questionnaire examining provider-patient/family relationship and participated in an individual qualitative interview regarding providers' views on pediatric adherence to antiretroviral therapy.
Results:
Providers believed that the limited treatment options currently available to HIV-infected children presented families with tremendous challenges to adherence. Most children were prescribed difficult treatment regimens and needed increasingly complex regimens for possible success in the future, placing further demands on the adherence issue. Although providers were able to identify several helpful communication strategies in theory, they were not able to consistently implement them in practice. Further, many families are also struggling with poverty, mental health and substance use problems, additional HIV disease in the family, and disclosure issues.
Discussion:
Adherence to antiretroviral therapy is a long-term, ongoing problem that is directly tied to the family life of the HIV-infected child. Providers clearly play an integral part in this struggle.
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