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Pilot of a workbook for children visiting a loved one in a hospice

Catriona Macpherson1, Cathy Cooke

  • 1Children and Families Service, Fife Palliative Care Service, Cedar House, Whyteman's Brae, Kirkcaldy, KY1 2LF, UK.

International Journal of Palliative Nursing
|November 1, 2003
PubMed

Insights

A pilot study found that a hospice workbook helped children aged 5-14 engage more during visits. The tool facilitated interaction with staff and supported discussions for families and healthcare providers.

Area of Science:

  • Pediatric Palliative Care
  • Child Life Services
  • Hospice Care

Background:

  • Children visiting loved ones in hospice often require support to understand and engage with their experience.
  • Existing resources for children in hospice settings may not adequately address their need for interaction and emotional expression.

Purpose of the Study:

  • To explore the utilization and impact of a newly developed workbook designed for children (aged 5-14) visiting a loved one in a hospice.
  • To gather perspectives from children, families, and hospice staff on the workbook's effectiveness and potential benefits.

Main Methods:

  • A small-scale qualitative pilot study was conducted.
  • Data were collected through observations and feedback from seven children, their families, and hospice staff.

Main Results:

  • All participating children enjoyed using the workbook, which enhanced their engagement during hospice visits.
  • The workbook facilitated relationship-building between children and staff, and stimulated discussions.
  • Children utilized the workbook in diverse ways, indicating a need for flexible implementation.

Conclusions:

  • The workbook shows potential in supporting children's experiences in hospice care by fostering interaction and communication.
  • Respecting individual and family needs is crucial for effective tool implementation.
  • The study highlights the necessity of training and emotional support for staff involved in using such resources.

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