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[Living with celiac disease].

A Ashkenzai1, G Barash

  • 1Dept. of Pediatrics B, Kaplan Hospital, Rehovot.

Harefuah
|October 1, 1992
PubMed
Summary

Children and adolescents with celiac disease (CD) can adhere to a gluten-free diet, maintaining comparable physical and academic performance to their siblings. While generally well-adjusted, some experience social challenges related to their food sensitivity.

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Area of Science:

  • Pediatric Gastroenterology
  • Nutrition Science
  • Psychosocial Health

Background:

  • Celiac disease (CD) results from gluten ingestion, causing intestinal damage and malabsorption.
  • Adhering to a strict gluten-free diet is challenging due to food labeling and parental/patient compliance issues.
  • Educating school personnel about celiac disease dietary needs is often insufficient.

Purpose of the Study:

  • To evaluate the physical, scholastic, and social impact of celiac disease and gluten-free diet adherence in adolescents.
  • To compare celiac disease patients (10-18 years) with their siblings regarding these parameters.

Main Methods:

  • A comparative study involving 25 celiac disease patients and 14 siblings.
  • Home-based interviews utilizing questionnaires to assess physical, scholastic, and social aspects.

Main Results:

  • Mean adherence to a gluten-free diet was high at 96.6%.
  • No significant differences were found in height, scholastic achievement, or social adjustment between patients and siblings.
  • Patients reported social difficulties, including unease at gatherings and emotional responses like unhappiness and anger.

Conclusions:

  • Adolescents with celiac disease can successfully manage their condition and diet while performing well academically and physically.
  • Despite overall satisfactory adjustment, psychosocial challenges related to social perception and self-identity persist.
  • Further support may be needed to address the social and emotional well-being of children and adolescents with celiac disease.

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