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A community-driven model of research participation: the Jackson Heart Study Participant Recruitment and Retention

Sharon B Wyatt1, Nancy Diekelmann, Frances Henderson

  • 1School of Nursing, University of Mississippi Medical Center, Jackson, Mississippi 39216-4505, USA. swyatt@son.umsmed.edu

Ethnicity & Disease
|November 25, 2003
PubMed

Insights

Recruiting African Americans for health research requires tailored strategies. The Jackson Heart Study developed a Community-Driven Model to effectively recruit and retain participants, addressing known challenges in minority research engagement.

Area of Science:

  • Public Health
  • Cardiovascular Disease Research
  • Health Disparities

Background:

  • Recruiting African Americans for research participation presents significant challenges.
  • The Jackson Heart Study (JHS) aims to recruit 6,500 African-American participants to study heart disease risk factors.
  • A preliminary study was essential for developing culturally specific recruitment and retention strategies.

Purpose of the Study:

  • To design a culture-specific plan for recruiting, retaining, and ensuring adherence of African-American participants in the Jackson Heart Study.
  • To identify barriers and facilitators to research participation among African Americans.
  • To understand the meaning of research participation for this demographic.

Main Methods:

  • Utilized probability and purposive sampling to select African-American adults aged 35-84.
  • Collected data through structured surveys (N=125) and in-depth interviews (N=31 individual; 10 group).
  • Analyzed data using inferential statistics and interpretive phenomenology.

Main Results:

  • Identified key barriers and facilitators influencing research participation.
  • Uncovered the lived experiences and motivations of participants.
  • Developed an emerging Community-Driven Model based on findings.

Conclusions:

  • The Community-Driven Model offers effective strategies for recruiting and retaining African Americans in research.
  • Culturally sensitive approaches are crucial for successful minority participation in health studies.
  • This model can inform future research endeavors involving underrepresented populations.

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