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The bm12 Inducible Model of Systemic Lupus Erythematosus (SLE) in C57BL/6 Mice
Published on: November 1, 2015
The Lupus Foundation as an additional source for case ascertainment: developing a community-based lupus registry
S G Fitzgerald1, C K Kwoh, D McCarty
1Department of Rehabilitation Science and Technology, School of Health Rehabilitation and Science, University of Pittsburgh, Pennsylvania, USA.
Objective:
To determine whether the local Lupus Foundation of America (LFA) chapter would provide a unique source of additional lupus incident cases for a population-based incidence registry of SLE.
Methods:
We reviewed membership and telephone records from the LFA to identify potential lupus cases. These potential cases were compared with the names on our previously developed incidence registry. Non-matches were interviewed concerning demographic characteristics and the signs and symptoms of lupus.
Results:
Of the 449 potential lupus cases identified through the LFA Western Pennsylvania Chapter (WPC), 108 (24%) were already in the incident lupus registry. Of the remaining unmatched cases, 26 reported a diagnosis of lupus in Allegheny County between 1985 and 1990. Of these, 5 patients met the criteria for definite or probable lupus.
Conclusion:
The LFA-WPC provided a negligible advantage in identifying additional incident lupus cases to those already identified through an established registry.
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