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Concerns about the future among older adults with multiple sclerosis
1Department of Occupational Therapy, University of Illinois at Chicago, 1919 West Taylor Street, Mail Code 811, Chicago, Illinois 60612, USA. marciaf@uic.edu
Older adults with multiple sclerosis (MS) fear losing mobility and independence. Occupational therapists must help them regain control and improve community support services for aging individuals with MS.
Area of Science:
- Neurology
- Gerontology
- Rehabilitation Science
Background:
- Multiple sclerosis (MS) is a chronic neurological disease impacting the central nervous system.
- While not significantly reducing life expectancy, MS presents unique challenges for older adults.
Purpose of the Study:
- To explore the health concerns and service needs of older adults diagnosed with MS.
- To identify specific fears and challenges faced by this demographic.
Main Methods:
- Phenomenological approach utilizing in-depth interviews.
- Study included 27 participants aged 55 to 81 years with MS.
Main Results:
- Fear of the future emerged as a primary concern for older adults with MS.
- Specific fears included loss of mobility, independence, becoming a caregiver burden, and institutionalization.
- Participants expressed a need for enhanced community support and interventions promoting a sense of control.
Conclusions:
- Occupational therapists face challenges in developing interventions for older adults with MS.
- Interdisciplinary collaboration (psychology, social work) is crucial for holistic care.
- Advocacy for improved community support services is essential for this population.
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