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Auditing AIDS reporting. Experience from a central London district 1982-1991.

I G Williams1, C Shergold, B Evans

  • 1Academic Department of Genitourinary Medicine, Middlesex Hospital, London, UK.

Genitourinary Medicine
|December 1, 1992
PubMed
Summary
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Reporting of Acquired Immunodeficiency Syndrome (AIDS) cases to the Communicable Disease Surveillance Centre (CDSC) declined between 1982-1991. This trend highlights critical gaps in surveillance and resource allocation for AIDS care.

Area of Science:

  • Epidemiology
  • Public Health Surveillance
  • Infectious Disease Reporting

Background:

  • Accurate reporting of Acquired Immunodeficiency Syndrome (AIDS) cases is crucial for effective public health surveillance.
  • Historical data from 1982-1991 is essential for understanding trends in disease reporting.

Purpose of the Study:

  • To evaluate the completeness of AIDS case reporting to the Communicable Disease Surveillance Centre (CDSC) in a specific health district.
  • To identify trends and factors associated with incomplete reporting of AIDS cases.

Main Methods:

  • A reconciliation exercise was conducted comparing CDSC-reported cases with those known to have received treatment.
  • Case notes of unreported cases were reviewed, and follow-up was performed.
  • Analysis focused on delayed and non-reporting of cases within the Bloomsbury and Islington District Health Authority.

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Main Results:

  • Cumulatively, 13% of diagnosed AIDS cases in the district remained unreported by March 1991.
  • Non-reporting rates increased significantly over time, from 9% before 1985 to 28% in 1989-1990.
  • A higher proportion of reported cases (78%) had specific AIDS diagnoses (Pneumocystis carinii pneumonia or Kaposi's sarcoma) compared to unreported cases (51%).
  • 47% of AIDS cases transferring into the district were not reported by their previous health authorities.

Conclusions:

  • Non-reporting of AIDS cases has increased within the district, correlating with rising patient numbers.
  • Physicians need to be aware of the full AIDS case definition for accurate surveillance.
  • Non-reporting has implications for resource allocation, emphasizing the need for improved information and reporting systems.