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Related Experiment Videos

Communicating suffering in primary stage head and neck cancer.

R J Moore1, R M Chamberlain, F R Khuri

  • 1Departments of Epidemiology, The University of Texas M.D. Anderson Cancer Center, Houston, TX, USA.

European Journal of Cancer Care
|February 14, 2004
PubMed
Summary
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Primary stage head and neck cancer survivors often under-report suffering due to fears of addiction and further diminished self-worth. Improving clinician communication is key to enhancing quality of life (QOL) for these patients.

Area of Science:

  • Oncology
  • Quality of Life Research
  • Patient Communication

Background:

  • Head and neck cancer patients' experiences of suffering post-treatment are crucial for QOL research.
  • Effective communication between clinicians and patients is vital for addressing patient suffering.

Purpose of the Study:

  • To explore factors influencing the communication of suffering in primary stage head and neck cancer patients.
  • To understand why patients may under-report their experiences of pain and psychological distress.

Main Methods:

  • Qualitative research methodology.
  • Open-ended interviews with 18 survivors of American Joint Committee on Cancer (AJCC) Stage I and II squamous cell carcinoma of the head and neck (SCCHN).
  • Verbatim transcription and thematic analysis of interviews.

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Main Results:

  • Three key themes emerged: a diminished sense of self, fear of pain medication addiction, and hopelessness/loss of meaning.
  • Patients under-report suffering primarily due to fears of being further diminished, addiction, and inability to cope with losses.
  • Failure to address these fears may lead to increased psychological morbidity and fatalism regarding treatment outcomes.

Conclusions:

  • SCCHN patients' under-reporting of suffering stems from significant fears that impact their QOL.
  • Enhanced clinician-patient communication addressing these fears can improve psychological well-being and QOL.
  • This study offers insights into improving care for curable head and neck cancers.