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Measuring information strategies in oncology - developing an information satisfaction questionnaire
R Thomas1, E Kaminski, E Stanton
1Addenbrooke's & Bedford Hospitals, Cambridge University NHS Trust, Cambridge, UK. rt@cancernet.co.uk
European Journal of Cancer Care
|February 14, 2004
Summary
This study developed a concise, single-page questionnaire to measure patient satisfaction with cancer care information. The tool helps audit information provision and improve services for better patient outcomes.
Area of Science:
- Oncology
- Health Services Research
- Patient Experience
Background:
- Accurate, culturally sensitive patient information is crucial in cancer care.
- Existing tools do not specifically measure patient satisfaction with information provided.
- Adapting information strategies to local needs presents a challenge.
Purpose of the Study:
- Identify key patient priorities regarding information during their cancer journey.
- Develop a validated, single-page questionnaire to assess patient satisfaction with cancer information.
- Audit information provision in clinical practice to identify areas for improvement.
Main Methods:
- A priority list was used with 77 cancer patients to identify important information aspects.
- Patient responses were categorized into five equal-weight categories.
- Demographic data were integrated to create a one-page questionnaire.
Main Results:
- A robust, one-page questionnaire was developed and adopted by the West Anglia Cancer Network.
- An audit of 100 patients highlighted information gaps in a community oncology department.
- Findings are actively reshaping information services within the network.
Conclusions:
- The developed questionnaire is a practical tool for auditing cancer patient information satisfaction.
- Regular use of this audit tool can improve information services in routine clinical practice.
- The questionnaire is available in seven languages for wider accessibility.