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Related Experiment Videos

A model for the HELLP syndrome: the maternal experience.

Maria C Kidner1, Mary Beth Flanders-Stepans

  • 1South Big Horn County Critical Care Access, Basin, WY 82410, USA. kidner@tctwest.net

Journal of Obstetric, Gynecologic, and Neonatal Nursing : JOGNN
|February 20, 2004
PubMed
Summary

Mothers experiencing HELLP syndrome (hemolysis, elevated liver enzymes, and low platelets) described a cyclical experience of loss of control and fear. Common themes included premonition, symptoms, betrayal, and guilt, forming a unique maternal health model.

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Area of Science:

  • Maternal Health
  • Critical Care Obstetrics
  • Qualitative Research

Background:

  • HELLP syndrome (hemolysis, elevated liver enzymes, low platelets) is a severe obstetric complication.
  • Understanding the lived experience of mothers with HELLP syndrome is crucial for improving care.

Purpose of the Study:

  • To describe the maternal experience of HELLP syndrome.
  • To identify common themes in these experiences.
  • To develop a model representing the HELLP syndrome experience.

Main Methods:

  • Retrospective, descriptive, qualitative study.
  • Grounded theory analysis.
  • Interviews with nine self-selected HELLP syndrome survivors from diverse US settings.

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Main Results:

  • The core experience is a "circle of no control and not knowing."
  • Five emergent themes: premonition, symptoms, betrayal, whirlwind, and loss.
  • Pervading emotions included fear, frustration, anger, and guilt.

Conclusions:

  • HELLP syndrome presents a unique and challenging maternal experience.
  • A model of the HELLP syndrome experience can be developed from identified themes.
  • Findings can inform patient support and clinical management.