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New directions in the outcome evaluation of children with cerebral palsy
Annette Majnemer1, Barbara Mazer
1School of Physical & Occupational Therapy, Department of Neurology & Neurosurgery, McGill University, Montreal, Quebec, Canada.
Insights
This study examines outcomes in children with cerebral palsy (CP), highlighting a shift towards broader assessments. Understanding these outcomes is crucial for improving CP care and supporting child and family well-being.
Area of Science:
- Pediatrics
- Rehabilitation Medicine
- Developmental Psychology
Background:
- Evolving understanding of childhood cerebral palsy (CP) necessitates updated outcome assessment strategies.
- The World Health Organization's (WHO) International Classification of Functioning, Disability and Health (ICF) framework guides a more holistic approach.
- Child and environmental factors significantly influence outcomes in children with CP.
Purpose of the Study:
- To explore emerging concepts in outcome measurement for children with cerebral palsy (CP).
- To analyze the evolution of outcome assessment in CP literature over a decade.
- To emphasize the importance of comprehensive outcome evaluation for clinical practice and program planning.
Main Methods:
- Literature review comparing studies published in 2002 with those from 10 years prior.
- Analysis of trends in outcome measures used for children with CP.
- Synthesis of factors influencing outcomes, including child and environmental elements.
Main Results:
- A notable increase in the number of studies and the diversity of outcome measures used for children with CP.
- Identification of key developmental transitions and their impact on outcomes.
- Recognition of the interplay between child characteristics and environmental contexts.
Conclusions:
- A broader approach to outcome assessment in CP is essential.
- Comprehensive understanding of CP outcomes and determinants is critical for effective clinical decision-making.
- Improved outcome evaluation supports enhanced community integration, social participation, and overall well-being for children with CP and their families.
Abstract:
This article addresses newly emerging concepts regarding the examination of outcomes in children with cerebral palsy (CP). Three important factors have prompted a change toward a broader approach to outcome measurement: (1) the recent endorsement of the World Health Organization classification scheme of functioning, disability, and health; (2) recognition of the importance of the role of child and environmental factors in modifying outcome; and (3) appreciation of the challenges faced at key transitions during development. Comparison of the literature on outcomes in children with CP published in 2002 with studies published 10 years earlier demonstrates an increased number of studies and a wider range of outcome measures used to characterize the functioning of these children. A better understanding of the extent and nature of the outcomes and their determinants is critical to guide clinical decision making and program planning to maximize community integration, social participation, and overall well-being of the child and family.
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Guidelines for Writing Outcome
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...