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Children with cochlear implants: changing parent and deaf community perspectives.

John B Christiansen1, Irene W Leigh

  • 1Department of Sociology, Gallaudet University, Washington, DC 20002, USA. John.Christiansen@Gallaudet.edu

Archives of Otolaryngology--Head & Neck Surgery
|May 19, 2004
PubMed
Summary

Parent and deaf community views on pediatric cochlear implantation are evolving. Most parents support sign language and desire earlier implantation, emphasizing continued involvement in their child's development.

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Area of Science:

  • Pediatric audiology
  • Deaf studies
  • Parental perspectives

Background:

  • Parental and deaf community views on pediatric cochlear implantation (CI) are critical for informed decision-making.
  • Understanding these perspectives is essential for supporting children with CIs and their families.

Purpose of the Study:

  • To examine evolving perspectives of parents and the deaf community regarding pediatric cochlear implantation.
  • To identify factors influencing parental decisions and experiences with CIs.

Main Methods:

  • Two nonrandom study designs were employed.
  • A questionnaire was distributed to 1841 parents of children with CIs (439 returned).
  • 56 interviews were conducted with parents of 62 children with CIs.

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Main Results:

  • Parents often receive conflicting information but generally support sign language use alongside CIs.
  • Parents show strong interest in spoken language development and often wish for earlier implantation.
  • Children with CIs are educated in diverse settings, frequently requiring support services and interacting with both deaf and hearing peers.

Conclusions:

  • Deaf community opposition to pediatric CI is shifting towards viewing it as one of several parental options.
  • Parental involvement in the child's social and educational development is crucial for optimal CI outcomes.