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Related Experiment Videos

Adolescents with Down syndrome.

Joav Merrick1, Isack Kandel, Gideon Vardi

  • 1National Institute of Child Health and Human Development, Office of the Medical Director, Division for Mental Retardation, Ministry of Social Affairs, Jerusalem, Israel. jmerrick@internet-zahav.net

International Journal of Adolescent Medicine and Health
|May 20, 2004
PubMed
Summary

Adolescents with Down syndrome (DS) face unique challenges during adolescence, impacting social maturation and independence. This review highlights strategies for a smoother transition to adulthood and healthcare, focusing on independence and employment.

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Area of Science:

  • Developmental Psychology
  • Pediatrics
  • Genetics

Background:

  • Adolescence is a critical developmental period marked by significant physical, emotional, and social changes.
  • Adolescents with Down syndrome (DS) experience typical adolescent development but may face additional challenges due to cognitive and behavioral factors.
  • Parental stress can be heightened during this transitional phase for adolescents with DS.

Purpose of the Study:

  • To review studies on the transition of adolescents with Down syndrome (DS) from childhood to adulthood.
  • To examine the shift in focus from medical issues to social maturation, independence, and post-school transitions for individuals with DS.
  • To provide recommendations for a smooth medical transition from pediatric to adult healthcare providers.

Main Methods:

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  • Review of longitudinal studies, primarily from the United Kingdom, following individuals with Down syndrome and controls from childhood through adulthood.
  • Analysis of research focusing on social maturation, independence, and vocational transitions.
  • Examination of medical transition processes and recommendations for healthcare providers.

Main Results:

  • While annual medical surveillance remains important for individuals with DS, the emphasis has increasingly shifted towards social development and independence.
  • Longitudinal data indicates specific challenges and successes in the transition from school to employment or work activities.
  • Recommendations are provided for facilitating the transition from pediatric to family physician care.

Conclusions:

  • The transition to adulthood for adolescents with Down syndrome requires a multifaceted approach, addressing social, vocational, and healthcare needs.
  • Supporting independence and social maturation is crucial for successful integration into adult life.
  • Streamlining the medical transition process is essential for continuity of care and improved outcomes for individuals with DS.