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Genetic services in the new era: Native American perspectives
1Department of Biological Sciences, Northern Arizona University, Flagstaff, AZ 86011, USA.
Community Genetics
|June 5, 2004
Summary
Native American communities face challenges in accessing genetic services due to historical context and cultural barriers. Addressing these issues is crucial for effective implementation of biomedical and biogenetic research and genetic counseling.
Area of Science:
- Bioethics
- Genetics
- Public Health
Background:
- American Indians are at a pivotal moment regarding biomedical and biogenetic research.
- Tribes express concerns about genetic patenting, cell lines, transgenic experimentation, and cloning.
- There is a spectrum of views on the Human Genome Diversity Project and related research, with some embracing benefits while others oppose it.
Purpose of the Study:
- To describe issues in developing and implementing effective genetic services for Native American communities.
- To identify barriers to accessing and utilizing genetic services.
- To provide recommendations for health professionals.
Main Methods:
- Literature review and synthesis of existing information on genetic services and Native American communities.
- Analysis of cultural, historical, and practical barriers.
- Development of recommendations based on identified issues.
Main Results:
- Significant opposition exists regarding genetic patenting and research, alongside a growing demand for genetic counseling.
- Barriers include access, perception of services, prior experiences with genetics, and cultural factors.
- Recommendations focus on culturally sensitive approaches and improved access.
Conclusions:
- Effective genetic service implementation requires addressing historical context, cultural sensitivities, and access barriers.
- Collaboration between health professionals and Native American communities is essential.
- Tailored genetic services can benefit Native American populations while respecting their values.