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Governing genetics: reifying choice and progress.

Anne Kerr1

  • 1Department of Sociology, University of York, Heslington, York YO10 5DD, UK.

New Genetics and Society
|July 31, 2004
PubMed
Summary
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This study reveals that despite diverse genetic technoscience, genetic governance often uses similar ethical frameworks. Individual choice and medico-scientific progress are common themes in policies on genetic patenting and stem cell research.

Area of Science:

  • Bioethics and Genetic Governance
  • Science, Technology, and Innovation Policy

Background:

  • The field of genetics encompasses a broad spectrum of technoscience, involving numerous policy networks.
  • Existing genetic governance structures exhibit a surprising degree of uniformity that warrants closer examination.

Purpose of the Study:

  • To investigate the uniformity in genetic governance across different policy networks.
  • To analyze the ethical frameworks employed in policies related to genetic patenting and embryonic stem cell research.

Main Methods:

  • A comprehensive review of policy documents concerning genetic patenting.
  • Analysis of policy documents related to embryonic stem cell research.
  • Examination of common rhetorical devices and ethical conceptions within these policy networks.
Keywords:
Biomedical and Behavioral ResearchEuropean Group on Ethics in Science and New TechnologiesGenetics and ReproductionLegal ApproachNuffield Council on Bioethics

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Main Results:

  • Policy networks frequently adopt similar approaches to conceptualizing the ethical dimensions of genetic technologies.
  • Common rhetorical devices identified include appeals to individual choice and medico-scientific progress.
  • These shared frameworks were observed in the governance of both genetic patenting and embryonic stem cell research.

Conclusions:

  • The study highlights a convergence in ethical reasoning within genetic governance, despite the diversity of genetic technoscience.
  • The prevalence of 'individual choice' and 'medico-scientific progress' as rhetorical devices shapes ethical debates.
  • Understanding these trends is crucial for anticipating the future trajectory of genetic policy and governance.