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Let the data speak for themselves?
1Department of Thoracic and Cardiovascular Surgery, The Cleveland Clinic Foundation, Cleveland, OH 44195, USA.
Insights
Comparing congenital heart surgery programs requires robust data. A data-centric approach, letting outcomes data guide comparisons, is essential for fair and accurate program evaluation.
Area of Science:
- Cardiovascular Surgery
- Medical Informatics
- Health Services Research
Background:
- Cardiac surgery outcomes data are crucial, but congenital heart disease presents unique challenges due to heterogeneity and rarity of anomalies.
- Comparing institutional programs for congenital heart disease is difficult due to variable outcomes.
- Current methods sometimes rely on expert opinion, a less data-driven approach.
Purpose of the Study:
- To advocate for a data-centric approach in comparing congenital heart surgery programs.
- To highlight the importance of outcomes data in evaluating congenital heart disease surgical programs.
- To contrast data-driven methods with expert opinion-based comparisons.
Main Methods:
- Discusses the historical evolution of scientific inquiry, referencing Aristotle and Newton.
- Emphasizes the principles of contemporary risk-adjusted comparisons.
- Proposes the development of international data collection standards and ontologies for congenital heart disease.
Main Results:
- A data-centric approach, "Let the data speak for themselves," is the foundation of modern risk-adjusted comparisons.
- Expert opinion-based comparisons are contrasted with data-driven methodologies.
- There is significant motivation and opportunity to advance data-centric comparisons in congenital heart surgery.
Conclusions:
- A data-centric approach is vital for fair and accurate comparisons of congenital heart surgery programs.
- Abandoning data-driven methods is not supported by evidence.
- Advancements in data collection, analysis, and understanding of risk factors support a data-centric future.
Abstract:
No medical discipline has been more shaped, driven, and scrutinized by outcomes data than cardiac surgery. Unlike high-volume operations for acquired heart disease, congenital heart disease is considerably more heterogeneous, many anomalies are rare, and outcomes after surgical correction are highly variable. How, then, can outcome of institutional programs be compared fairly? Growing in popularity among congenital heart surgeons are methods of comparison that rely fundamentally on expert opinion about perceived complexity of treatment. They may be broadly calibrated using administrative or registry outcomes data. This approach, one of two suggested by Aristotle, characterized pre-Newtonian science, in which observed data played a secondary role. This contrasts sharply with the second approach suggested by Aristotle and revived by Newton in the 18th century that places data at its center: "Let the data speak for themselves." The latter is the basis for contemporary methods of risk-adjusted comparisons. The proposed international collection of a uniform set of congenital heart surgery data elements, a well-conceived and internationally accepted ontology of congenital heart disease, accurate understanding of established incremental risk factor concepts and their role in risk adjustment, advent of powerful data analysis techniques that include new types of predictive modeling, and wide understanding of risk-adjusted comparison suggest there is ample motivation and opportunity for letting data speak for themselves. There is no evidence that a data-centric approach, based on Aristotle's and Newton's ideas that liberated 18th century science, has failed and should be abandoned.
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