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Exploring issues of parental consent to research: a case-study approach
Judy Peters1, Imelda Charles-Edwards, Linda S Franck
1Institute of Child Health.
British Journal of Nursing (Mark Allen Publishing)
|July 31, 2004
Summary
A novice nurse researcher faced challenges obtaining informed consent from parents of critically ill children due to language and cultural barriers. Reflection enhanced her understanding of ethical research practices and improved her confidence in patient recruitment.
Area of Science:
- Nursing Research
- Clinical Ethics
- Qualitative Research
Background:
- Novice nurse researchers may encounter complex ethical dilemmas during patient recruitment.
- Obtaining informed consent requires careful consideration of parental understanding and potential vulnerabilities.
- Cultural and linguistic factors can significantly impact the validity of the consent process.
Observation:
- A critical incident occurred during the consent process for a critically ill child.
- Language and cultural differences posed a barrier to effective communication.
- The researcher questioned the validity of the consent and the potential for sample bias.
Findings:
- The researcher's reflection revealed a deeper understanding of her responsibilities in patient recruitment.
- Ethical considerations regarding informed consent were highlighted.
- The experience underscored the importance of addressing cultural and linguistic diversity in research.
Implications:
- Novice researchers need structured support and training to navigate ethical challenges.
- Future research practice should integrate strategies for culturally sensitive and linguistically appropriate consent.
- Enhanced researcher confidence and competence can be achieved through reflective practice.
Keywords:
Biomedical and Behavioral Research