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What does it mean to involve consumers successfully in NHS research? A consensus study.

Rosemary Telford1, Jonathan D Boote, Cindy L Cooper

  • 1Sheffield Care Trust, University of Sheffield, Sheffield, UK. r.telford@sheffield.ac.uk

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|August 26, 2004
PubMed
Summary

Consensus was reached on eight key principles for successful consumer involvement in National Health Service (NHS) research. These principles and their indicators can guide researchers and consumers in improving research practices.

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Area of Science:

  • Health Services Research
  • Patient and Public Involvement (PPI)

Background:

  • Consumer involvement in National Health Service (NHS) research is crucial for relevance and impact.
  • Establishing clear principles and measurable indicators for successful involvement is essential for effective implementation.

Purpose of the Study:

  • To achieve consensus on the core principles and measurable indicators of successful consumer involvement in NHS research.
  • To develop a framework that can guide and improve patient and public involvement in health research.

Main Methods:

  • Consensus methodology, including an expert workshop with nominal group technique and a two-round postal Delphi process.
  • Purposive sampling to recruit 96 participants with expertise in consumer involvement from health, social care, universities, and consumer organizations.

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Main Results:

  • Eight principles for successful consumer involvement in NHS research were developed and validated.
  • Consensus was achieved on at least one clear and valid indicator for each principle, facilitating measurement of effectiveness.

Conclusions:

  • A consensus has been established on eight principles for effective consumer involvement in NHS research.
  • These principles and indicators offer guidance for commissioners, researchers, and consumers to enhance understanding and practice in research involvement.