Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Ethics in population-based genetic research.

Matthew DeCamp1, Jeremy Sugarman

  • 1Duke University Medical Scientist Training Program, School of Medicine and Department of Philosophy, Durham, NC, USA.

Accountability in Research
|September 3, 2004
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research.

SSM. Qualitative research in health·2026
Same author

Perceived Ethical Risks of HIV Phylogenetic Research: Insights from Professional Stakeholders in Uganda.

AIDS research and human retroviruses·2026
Same author

Correction: Does Bioethics Pay Sufficient Attention to Issues Related to Chronic Disease? A Survey of Articles Published in Top Bioethics Journals from 2001 to 2024.

HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues·2026
Same author

Ethical and Regulatory Considerations for Developing Gene Therapies Involving Genome Editing.

Human gene therapy·2026
Same author

Impact of Legal Perceptions and Disclosure on Willingness to Undergo HIV Antiretroviral Resistance Testing Among Men Who Have Sex with Men: A Brief Report.

AIDS and behavior·2026
Same author

"Black box" artificial intelligence for mortality prediction: a mixed-methods study of palliative care team, patient, and caregiver perspectives.

Annals of palliative medicine·2026
Same journal

Correction.

Accountability in research·2026
Same journal

Development, validity, and reliability of the pre-attendance conference evaluator (PACE) tool for identifying predatory conferences.

Accountability in research·2026
Same journal

Managing manuscripts with potential dual-use research of concern: A thematic analysis of life science journal policies.

Accountability in research·2026
Same journal

Researching retraction: Do we need more rules or more honesty?

Accountability in research·2026
Same journal

Accountability in evidence syntheses: On the need for rigorous peer review and reporting guidelines.

Accountability in research·2026
Same journal

Shared responsibility to address questionable research practices? - A study of perceived efficacy of organizational research integrity policies.

Accountability in research·2026
See all related articles

Population-based genetic research offers insights into common diseases but requires careful ethical consideration. Balancing individual protections with scientific advancement is crucial for responsible genetic studies.

Area of Science:

  • Genetics and Bioethics
  • Population Health Research

Background:

  • Population-based genetic research, including genetic epidemiology, has significant potential for understanding complex human diseases.
  • Ethical conduct is paramount for realizing the benefits of research involving human subjects.
  • An appropriate balance must be struck between individual protections and scientific progress.

Purpose of the Study:

  • To review the ethical issues in population-based genetics research.
  • To identify areas of emerging consensus and future research needs in genetics research ethics.

Main Methods:

  • Review of the existing literature on genetics research and ethics.
  • Focus on fundamental ethical considerations in population-based studies.

Main Results:

Keywords:
Biomedical and Behavioral ResearchGenetics and Reproduction

Related Experiment Videos

  • Key ethical issues identified include research design, participant recruitment, informed consent, and handling of research findings.
  • The review highlights areas where ethical consensus is developing.

Conclusions:

  • Ethical considerations are integral to the successful and responsible conduct of population-based genetic research.
  • Further work is needed to address emerging ethical challenges in the field.